Sagan: Chaos and Order

You must have chaos within you 

in order to give birth 

to a dancing star.

Frederich Nietzsche

The universe, filled with nebulae, black holes, and the mysteries of time and space, was begotten from atomic chaos. Billions of years ago, all space, matter, and energy in our known universe was contained in a "volume less than one-trillionth the size of a needle point" or about the size of a single atom (deGrasse Tyson, 2004). This preplanetary pandemonium would impregnate our mother in this massive cosmos - Earth's solar system. Out of this frenetic and violent chaos, would come life, order, and beauty. These are key principles of physics and astrophysics: supernovas that outshine entire galaxies are born from massive stellar explosions, their remnants capable of forming ominous black holes or neutron stars and pulsars that are up to eight times larger than our sun; and the untempered chaos of a seemingly libertine universe gives rise to the magnificence of the cosmos.

On July 27, 1994, my own universe imploded when my baby died. I've found myself present with sadness and absent words this July, as I have been during the past 14 voyages of the Earth about its star between June and August. My grief feels like the fledgling cosmos. Chaotic, disordered, confused, violently out of control. Still, I take comfort in reflecting on the genesis of our macrocosm. 

Grief, like our universe, is often indescribable; it is elusive, creviced, and wordless. There exist within it many great mysteries, places unexplored and unknowable given the ephemerality of time. One pithy moment of grief gives rise to a new precipice, like a pulsar in my own universe of loss. I'm sitting quietly with this idea, and I'm reminded of Nietzsche's notion that order will come of the chaos, meaning of the confusion, and that I can, indeed, have my dancing star amidst it all.  Caret initio et fine.

RIP Carl...

November 9, 1934   to   December 20, 1996

A Cry Unheard

Seeking to forget makes exile all the longer; the secret of redemption lies in remembrance.

Richard von Weizsaecker

I picked up a new book last week on the recommendation of a colleague: A Cry Unheard: The Medical Consequences of Loneliness by James J. Lynch. I only wish I'd had this book in hand when I conducted my own research on the effects of social support on women after the death of a baby.  This seminal book is filled with clinical research on the dangers of social isolation, including the effects on the body and health.  Lynch captured data demonstrating the devastating health consequences of shame, anxiety, anger, and fear that was unrecognized, undetected, and most importantly, unheard.  I think this fact, for me, was the most important. It wasn't that the emotions themselves were "bad" or "negative" as contemporary theorists might imply. It was that the person experiencing them, and others too, did not acknowledge the emotions that created the problematic outcomes.  They were abandoned- both by others, and also by themselves.

In sum, he found that such social disenfranchisement can lead to fluctuations in blood pressure and respiration, depressed immune functioning, heart disease, hypertension, and a host of other physiological maladies. He notes that: "Those lacking social support, those who live alone, those who struggle with chronic loneliness, those who lose a loved one, all exhibit sharply increased risks of dying prematurely."

I've posted a great deal about narcissism, grief, and finding gratitude- and how, when the time is right, there is an imperative to move beyond our own suffering and see the suffering of the other.  There are some bereaved who may never move to that space where they are willing, thus able, to do that. Lynch calls this the "black hole". He says:  "Like black holes in space, such individuals absorb all light and all objects around them while emitting nothing back. Nothing escapes their...emptiness."

Conversely, he recommends looking "out into the world beyond the confines of your own skin...listening to a bird sing can lower blood pressure...gazing at the stars" too. "Listening to one's fellow (hu)man in dialogue can lower blood pressure."  Basically, moving beyond the necessary narcissism of early grief.

Lynch believes that "dialogue is the elixir of life and chronic loneliness its lethal poison". But what about the dialogue often aimed at bereaved parents? You know- those promptings to "move on", "God has a plan for you", "at least it wasn't one of the older ones", "you can have more", "everything happen for a reason", "time heals all wounds", and "aren't you done grieving yet"s?  Lynch said that dialogue can also be used to create distance, that it can be used to manipulate. He asserts that "empty language suppresses hope...and is spoken from outside our own hearts...(where) human dialogue is ruptured, destroyed, or reduced to a living hell" when abused in this way.  He termed it toxic talk, and far too many bereaved parents have experienced a litany of such dialogue.

I deeply appreciated Lynch's honest explorations as a medical doctor, professor, and human being.  It confirmed that the bereaved should be sensitive to their own needs; and then, when ready, actively engage in moving beyond the self.  The (temporarily) non-bereaved should engage in dialogue that is comforting and from the heart. They should not seek to cure or heal or absolve. Rather, they should seek only to be with the suffering. They should use words with great care and intention, for it is easy to destroy a fragile other with a few, seemingly benign, syllables. 

Allow them to remember, and invite them warmly back from exile.

The First Smile

The world breaks us all, 

and afterward some are stronger in those broken places.

Ernest Hemingway

I remember the day with piquant detail. The first smile after she died, cracking my cheeks, splitting my skull in two. I felt as if I'd committed an act of desecration, voyeurs witnessing my fait accompli. My dead child in her pink satin casket lay there lifeless. And I smiled. 

I do not recall who caused this act of irreverence- or what they said or did to prompt it. I only remember standing outside of myself in shame. Smiling is an act of the living. I was not alive; I certainly felt dead.  But the dead do not smile.  

I knew in that moment I was not one of the dead. No matter how much I beckoned, I knew Death would come on its own will.  I also knew that I was not amongst the real living. I existed in some liminal place between breath and stillness, extinction and existence, nether and numinous, and life and death.  I was broken, irreparably shattered.

For months, I wandered through the valley of the shadows as I vacillated between the world of the living and the world of the dead. I struggled to accept life's mediocrity, longed for my now fugitive naïveté, and wished for ailments of trivia instead of trauma.  

What glue could hold those broken places? What stitch would ensure proper healing? What concoction would purge me of the pain? Which God could heal my suffering and despair?

It would be many months before smiles would come again. But they came. Slowly and painfully. I did not want others to assure me that it was okay to smile and that I should move on and be happy in my life. This, I knew, would one day be my truth. But I was not ready yet. I needed pause. Her life and death were worthy of this interruption in my previously assumed entitlement to an untainted, joyous sojourn. Instead, I wanted others to accept my shame without judgment, to hold a place for my broken, sometimes irrational, state of mind. Often, they could not. Like a leper, raw grief frightened them. 

Nevertheless, I would not accept their platitudes or poisons. I rejected their attempts to tug me toward the future faster than I was ready. I refused to abandon my brokenness in exchange for cheap glue or careless stitching. I indulged in time and tears and tribulation. I became a seeker of healing that would endure, not healing that was shoddily constructed with plastic words, or pills, or even a magic wand, susceptible to rebreaking under the slightest pressure.

What I've realized over the past 14 years is that it was the very grief that frightened them- that raw grief which seeped from my broken places like blood spilling from a wound- that truly healed me. I have become stronger in my broken places.  And I am smiling again.

From the Gallows of Grief to Gratitude

There is nothing so whole as a broken heart.

Mendel of Kotzk

This quote reminds me of what I've learned during my grief journey. 

I've learned that in brokenness, there can be wholeness. In the darkness, there can be light. In egoism, there can be selflessness. In despair, there can be hope. In ungratefulness, there must, eventually, be gratitude. 

This isn't just psychobabble; for many, it is their survivalist reality. It is the only way that so many bereaved have moved beyond mere suspension.  Those who allow themselves to experience gratitude are often able to transcend their former place in the world. They not only become whole again, but they have reached a threshold of completeness they would never have known would it have not been for their confinement to the gallows.

These are individuals who, despite incapacitating trauma and turmoil, manage to find gratitude for the goodness in their lives. This is not a magical moment of epiphany for many of them. Rather, it evolves over time and with intense cognitive effort.  I believe that finding gratitude- even crumbs or morsels at first- requires emotional maturation, practice, and mindfulness. 

It requires us  to first focus on the self- to take personal responsibility for our own suffering. To acknowledge it. To tell and retell our story. To know ourselves well. It requires us to acknowledge that there is healing in our suffering. It requires that we silence our minds, respect our body's response to the grief, and be gentle with ourselves. It commands patience, intentionality, and commitment to the insufferable pain that radiates from the tips of our hair to the tips of our toes...the agony that causes every cell in our bodies to ache. It requires that we reach out for help from others, sometimes strangers, and that we accept the outreached hand with grace.

Then, when we are ready, we must move beyond the self. We must see the suffering of others. We must acknowledge the other's pain sans the fear of losing or diminishing our own suffering. We must be able to sit compassionately with another, abandoning for a moment our own grief's narcissistic exigence. We must  widen our circle of compassion for all beings suffering. We must see the world through others' eyes.  

We must recognize the acts of kindness, courage, and sacrifice that others have offered along our journey, and extend that droplet of hope to another. It requires that we honor even ill-fated attempts to comfort, and that we reconsider exchanging alienation, anger, and resentment for tolerance, empathy, and acceptance. We must seek gratitude daily, even for the 'small' things in life, like a dandelion dancing on the warm breeze, shadows playing in the park, or a fiery sun setting against a mountainous silhouette- or perhaps, a simple kind word of support from a friend...

Like threads in a garment, grief runs in and out of our daily lives from the instant of Death, one moment often indistinguishable from the next for many days and months. There is a time for this. There is a time to wallow in the mud, a time to pause for the entangling. The garment is unravelling and grief has patterned your life, against your will, in an unfamiliar mosaic.  Yet, gratitude can truly help us to heal from our suffering when the time is right to reconvene our lives. 

And when that time comes, consider your complaints and revisit your expectations. Take the time to fill your heart with gratitude. You can be grateful for what you have without taking away from that which you have lost. 

So, tell someone who has helped you how grateful you are for their presence in your life. Hug someone you love and tell them three things you admire about them. Write a letter or send a card to someone who is making a difference in your community. Leave an anonymous gift for a teacher, doctor, or other "carer". Reach out to another person in mourning.  Let gratitude hang in the shadows, parallel to your grief. It is not magic, but it is transformative. 

When we allow the experience of gratitude, the heart may still be broken but the heart is also most full, most whole, and most complete. Mendel of Kotzk also said, "Where is God to be found? In the place where He is given entry".  Where is gratitude to be found? It can be found in the very place where you have also given it entry. Grief and gratitude can coexist.

I dedicate this posting to our wonderful MISS Foundation moderators, volunteers, and facilitators.  For your commitment to helping others, I am so incredibly grateful.

Synchronicity

“So when you are listening to somebody, completely, attentively, then you are listening not only to the words, but also to the feeling of what is being conveyed, 

to the whole of it,  not part of it.”

Jiddu Krishnamurti

I met a fascinating man today who approached me, interested in my work with the bereaved. It's amazing how, when you meet a kindred soul, you can listen and exchange for hours upon hours and never tire of the conversation because it is intentional, meaningful, and consequential. 

We spoke about life and loss, trauma and tribulation, reality and relationships, loving and listening.

Listen. Listen. Listen.  

Repeat the word, twenty times. Softer. Listen, listen, listen.

Listening to the other can have powerfully therapeutic effects. Holding a space for the other through silence.  Being fully present, all senses focused on the other, their moment of disclosure- be it filled with suffering, sorrow, despair, or joy- being that which Pine (1985) calls a prepared explorer into another person's life.  Gadamer says that the important thing is to "be aware of one's own bias so that the text may present itself in all its newness and assert its own truth."

Reik (1954) discussed listening with the "third ear."  This is psychoanalytic listening intent on intuition. It requires that full experience of presence with the other.  He says, "...in order to comprehend the unconscious of another, we must, at least for a moment, change ourselves into and become that person.  We only comprehend the spirit whom we resemble."  I might call this true, empathic connectedness.  Freud calls it "listening with evenly suspended attention."  The results can be astonishing- acknowledgement and validation of a person and their place in the world. Thank you, David.

What greater gift can you offer to another than intentionality, consequentiality, and meaning?

And I submit this: Offer this gift, also, to yourself. Listen to the thoughts and the emotions and the memories and the pain and the struggles and the fears and the sounds and the beauty of you.  

Do what you must do to become who you must become.

The Risk of Love

The most secure prisons are those we construct for ourselves.

Gordon Livingston, M.D.

How does one live in a world where children die? 

Living in 21st Century, relatively affluent American society we are unaccustomed to the idea that children die. Yet, there was a time, not long ago- and still true in many parts of the world, when many, many children died. Two dead children in a family of four was not the exception just 100 years ago, or more commonly five dead children in a family of ten.  But our worldview- our very expectations upon which we construct our futures- patently rejects the idea that our families can be swiftly shredded at Death's whim. Due to medical advances, sanitation improvements, and other accoutrements of modern life, most have become wholly unfamiliar with early death, both during infancy and childhood as well as early adulthood, in Western society.

In fact, many believe they can beat Death at His game. Many nonprofit organizations exist to eradicate Death. They are single-cause focused. They want to cure, prevent, heal, and prolong. All worthy causes, indeed. But Death is a formidable enemy who will not secede. We may cure cancer one day, or heal brain injuries, or prevent suicide or car crashes or stillbirth or SIDS...but Death will, for us all, come one day. We can only hope that He comes for the parents first, and then that He comes for parents at the end of their lives, and not prematurely.  We can only hope that for the rest of the world's children, too. Sadly, in a world of inequity and suffering, this is unlikely.  

That is why the MISS Foundation exists. Because since the beginning of man's time on this planet, children have died. And until man takes his final step on this earth, children will continue to die.   We can be imprisoned and paralyzed by fear, anxiety, grief, despair, and sadness. Our children's lives are certainly worthy of such psychological woes.  I think of the purgatorial state of the mother in the film "What Dreams May Come."  Her prison- one of her choosing- was painful for me to watch... it represented a familiar place to which I'd once condemned myself.  In a sense, perhaps, punishment to an austere life is the only justice a mother can give her dead child.

Perhaps not. 

Perhaps, instead, our penalty for outliving our children is the task of seeking connection in the midst of an imperfect world, reinventing ourselves in the midst of our child's ghost, rebirthing in the midst of suffering, or finding a way to love despite the pain. Love, Livingstone says, is the ultimate risk. When we cannot change the parts we wish were different, the unfairness and cruelty of life, we've only one  choice.  To live or die.  Yet, to surrender our existence would be to abandon all that is beautiful about our children who died. Indeed, he says, living after a traumatic death is both an act of will and an act of surrender. He speaks from very personal experience.

Livingstone is a bereaved parent twice. His eldest son completed at suicide, and his youngest, only 13, died of leukemia. How does one exist in a world where children die? I think, perhaps, through that for which we are willing to risk everything- love.

Love and Despair

In the abyss 

I saw how love held bound

Into one volume all the lives whose flight

Is scattered through the universe around;

How substance, accident, and mode unite,

Fused, so to speak, together in such wise

That this I tell is one simple light.

-Dante, from the Divine Comedy

Love, or what Bowlby would call attachment, is a phenomenon unique to humans. Or is it? There is neuroscientific evidence to demonstrate that animals display some type of attachment behaviors, most often observed between mothers and their offspring, in the animal kingdom.

And where there is love, there is grief.

Many animals, from cows to dogs to baboons, exhibit fierce grief responses when separated from their mothers. They first enter a phase of protest, pacing back-and-forth, searching and yearning for the object of their affection.  Some mothers, in response to the separation from their babies, begin self-harming behaviors, such as chewing their own limbs or intentionally injuring themselves.  A puppy separated from his mother will "let out a piteous whine, high-pitched and grating as every aspect of his behavior broadcasts his distress" (Lewis & Amini, 2000).   This behavior is even observed in rats.  

Mammalian protests in the animal kingdom mirror human physiologic responses to loss. During protest,  hearts palpate, catecholamines and cortisol flourish, and the body is on high alert and arousal.  High levels of chronic cortisol, the stress hormone, can compromise the immune system, interrupting important processes for the body. In sum, intense disequilibrium to the homeostatic condition can occur- very dangerous, not just psychologically, but biologically too.

This is the state of despair.  The anchored weight of grief turned inward. Apathy, lack of focus, anhedonism, bleakness...hopeless and helpless...alone in the world.   

If separating animals from their offspring can cause disruption, just imagine- in the human relationship- the depth of emotional responses to such separation. The architecture of attachment is complex, particularly the attachment between a human mother and her child. Woven into the relationship are generations of evolutionary adaptations tailor-suited to accommodate the unique relationship that will require bonding like no other relationship on the planet. What happens when that bond is prematurely broken? Despair. A state of despair.

Yet, human beings also have the capacity to help one another. Studies suggest that connectedness with like others has powerful effects on the brain- mainly, the limbic system- as well as our experiences of loss. Being helped by and helping others is a powerful healer. No, it isn't magic- there is no panacea- no voodoo that can cure a mother's grieving heart. But both social support and social outreach have powerful effects on a person.  

The MISS Foundation  provides a safe place for grieving families in despair.  It's a place to first find help, then later to provide hope to another. Family and friends- communities- should also strive to provide a safety net to help. Something so unspeakable- something so tragic- should never be endured alone.

Just as despair can come to one only from other human beings, 

hope, too, can be given to one only by other human beings.

- Elie Wiesel